{"id":1100,"date":"2025-05-07T11:14:49","date_gmt":"2025-05-07T09:14:49","guid":{"rendered":"https:\/\/www.caregiving-tests.de\/?page_id=1100"},"modified":"2025-10-08T11:46:16","modified_gmt":"2025-10-08T09:46:16","slug":"subjektive-pflegebelastung","status":"publish","type":"page","link":"https:\/\/www.caregiving-tests.de\/en\/subjektive-pflegebelastung\/","title":{"rendered":"Subjective Burden"},"content":{"rendered":"<p>Gr\u00e4\u00dfel and Adabbo (2011) defined informal <strong><em>caregiver burden<\/em><\/strong> as the subjective perception of stress that results from a domestic care situation. The extent to which a caregiver (CG) feels stressed varies from person to person. <strong>Subjective burden is associated with various effects: The greater the subjective burden of the CG, the greater the effects<\/strong>, namely, (a) psychological complaints, especially depression (e.g., del-Pino-Casado et al., 2019; del-Pino-Casado et al, 2021), (b) physical complaints, such as cardiovascular disease (Ahn et al., 2022), and (c) unfavorable behaviors of the CG toward the care-recipient (Boye &amp; Yan, 2018), most frequently including verbal aggression (Storey, 2020). However, the risk that home care will have health consequences for CGs is also influenced by personality traits (e.g., neuroticism and optimism) and individual competence (e.g., perceiving oneself as competent in the care situation) (van der Lee et al., 2014).<\/p>\n<p>The operationalization of the concept of the subjective burden of the CG is based on two central models: the Caregiver Stress Model by Pearlin et al. (1990) and the Transactional Stress Model by Lazarus and Folkman (1984).<\/p>\n<p>The <strong>Caregiver Stress Model<\/strong> postulates five interrelated components of caregiver burden: socioeconomic factors (e.g., income, education), primary stressors (e.g., the subjective experience of disadvantage), secondary stressors (e.g., challenges in professional life arising from the caregiving situation), secondary intrapsychic stressors (e.g., conflicts between one\u2019s job and caregiving demands), and the general effects of caregiver burden (e.g., health consequences).<\/p>\n<p>By contrast, the <strong>Transactional Stress Model<\/strong> outlines the idea that stress depends on the CG\u2019s primary and secondary appraisals (i.e., cognitive processes). Thus, a CG\u2019s subjective burden depends on how the CG assesses the care situation (primary appraisal) and the extent to which they feel able to deal with this situation (secondary appraisal; see Graessel &amp; Adabbo, 2011).<\/p>\n<p>The <strong>Burden Scale for Family Caregivers (BSFC)<\/strong> is an instrument for recording a CG\u2019s subjective burden. It was developed and validated for CGs, regardless of the cause of the need for care (e.g., stroke, cancer, rheumatism, dementia), regardless of the relationship of the CGs to the care-recipients (caregiving parent, caregiving partner, caregiving adult children, no degree of kinship), and also regardless of the intensity of the need for help (from light support to severe need for care). There is a long form of the BSFC, which has 28 items, and a short form called the BSFC-s, which has 10 items.<\/p>\n<div class=\"rrze-elements accordion style_default\" id=\"accordion-0\"><\/p>\n<div class=\"accordion-group med\">\n<h2 class=\"accordion-heading\"><button class=\"accordion-toggle\" data-toggle=\"collapse\"  href=\"#collapse_0\" aria-expanded=\"false\" aria-controls=\"collapse_0\" id=\"collapse_button_0\"> Information about the Burden Scale for Family Caregivers (long form) <\/button><\/h2>\n<div id=\"collapse_0\" class=\"accordion-body\" aria-labelledby=\"collapse_button_0\">\n<div class=\"accordion-inner clearfix\">\n<ul>\n<li><span style=\"font-size: 12pt\"><a href=\"https:\/\/www.caregiving-tests.de\/wp-admin\/customize.php?theme=fau-events&amp;return=https%3A%2F%2Fwww.caregiving-tests.de%2Fwp-admin%2Fthemes.php\">General Information<\/a><\/span><\/li>\n<li><span style=\"font-size: 12pt\"><a href=\"https:\/\/www.caregiving-tests.de\/wp-admin\/customize.php?theme=fau-events&amp;return=https%3A%2F%2Fwww.caregiving-tests.de%2Fwp-admin%2Fthemes.php\">Information about the item construction and validation of the BSFC<\/a><\/span><\/li>\n<li><span style=\"font-size: 12pt\"><a href=\"https:\/\/www.caregiving-tests.de\/wp-admin\/customize.php?theme=fau-events&amp;return=https%3A%2F%2Fwww.caregiving-tests.de%2Fwp-admin%2Fthemes.php\">Research<\/a><\/span><\/li>\n<li><span style=\"font-size: 12pt\"><a href=\"https:\/\/www.caregiving-tests.de\/wp-admin\/customize.php?theme=fau-events&amp;return=https%3A%2F%2Fwww.caregiving-tests.de%2Fwp-admin%2Fthemes.php\">BSFC &#8211; Demonstrated effectiveness in research and practice<\/a><\/span><\/li>\n<li><span style=\"font-size: 12pt\"><a href=\"https:\/\/www.caregiving-tests.de\/wp-admin\/customize.php?theme=fau-events&amp;return=https%3A%2F%2Fwww.caregiving-tests.de%2Fwp-admin%2Fthemes.php\">Download<\/a><\/span><\/li>\n<\/ul>\n<\/div>\n<\/div>\n<\/div>\n<div class=\"rrze-elements accordion style_default\" id=\"accordion-1\"><\/div>\n<div class=\"accordion-group med\">\n<h2 class=\"accordion-heading\"><button class=\"accordion-toggle\" data-toggle=\"collapse\"  href=\"#collapse_1\" aria-expanded=\"false\" aria-controls=\"collapse_1\" id=\"collapse_button_1\"> Information about the Burden Scale for Family Caregivers (short form) <\/button><\/h2>\n<div id=\"collapse_1\" class=\"accordion-body\" aria-labelledby=\"collapse_button_1\">\n<div class=\"accordion-inner clearfix\">\n<ul>\n<li><span style=\"font-size: 12pt\"><a href=\"https:\/\/www.caregiving-tests.de\/wp-admin\/customize.php?theme=fau-events&amp;return=https%3A%2F%2Fwww.caregiving-tests.de%2Fwp-admin%2Fthemes.php\">General Information<\/a><\/span><\/li>\n<li><span style=\"font-size: 12pt\"><a href=\"https:\/\/www.caregiving-tests.de\/wp-admin\/customize.php?theme=fau-events&amp;return=https%3A%2F%2Fwww.caregiving-tests.de%2Fwp-admin%2Fthemes.php\">Information about the item construction and validation of the BSFC-s<\/a><\/span><\/li>\n<li><span style=\"font-size: 12pt\"><a href=\"https:\/\/www.caregiving-tests.de\/wp-admin\/customize.php?theme=fau-events&amp;return=https%3A%2F%2Fwww.caregiving-tests.de%2Fwp-admin%2Fthemes.php\">Research<\/a><\/span><\/li>\n<li><span style=\"font-size: 12pt\"><a href=\"https:\/\/www.caregiving-tests.de\/wp-admin\/customize.php?theme=fau-events&amp;return=https%3A%2F%2Fwww.caregiving-tests.de%2Fwp-admin%2Fthemes.php\">BSFC &#8211; Demonstrated effectiveness in research and practice<\/a><\/span><\/li>\n<li><span style=\"font-size: 12pt\"><a href=\"https:\/\/www.caregiving-tests.de\/wp-admin\/customize.php?theme=fau-events&amp;return=https%3A%2F%2Fwww.caregiving-tests.de%2Fwp-admin%2Fthemes.php\">Download<\/a><\/span><\/li>\n<\/ul>\n<\/div>\n<\/div>\n<\/div>\n<div class=\"rrze-elements accordion style_default\" id=\"accordion-2\"><\/div>\n<div class=\"accordion-group med\">\n<h2 class=\"accordion-heading\"><button class=\"accordion-toggle\" data-toggle=\"collapse\"  href=\"#collapse_2\" aria-expanded=\"false\" aria-controls=\"collapse_2\" id=\"collapse_button_2\"> Literature <\/button><\/h2>\n<div id=\"collapse_2\" class=\"accordion-body\" aria-labelledby=\"collapse_button_2\">\n<div class=\"accordion-inner clearfix\">\n<p><span style=\"font-size: 12pt\">Ahn, S., Esquivel, J. H., Davis, E. M., Logan, J. G., &amp; Chung, M. L. (2022). Cardiovascular disease incidence and risk in family caregivers of adults with chronic conditions: a systematic review.\u00a0<i>Journal of Cardiovascular Nursing<\/i>,\u00a0<i>37<\/i>(3), E47-E60.<\/span><\/p>\n<p><span style=\"font-size: 12pt\">Boye, F. &amp; Yan, E. (2018). Abuse of older persons with dementia: A review of the literature. <em>Trauma, Violence &amp; Abuse, 19<\/em>(2), 127-147.<\/span><\/p>\n<p><span style=\"font-size: 12pt\">del-Pino-Casado, R., Priego-Cubero, E., L\u00f3pez-Mart\u00ednez, C. &amp; Orgeta, V. (2021). Subjective caregiver burden and anxiety in informal caregivers: A systematic review and meta-analysis. <i>PLOS ONE<\/i>,\u00a0<i>16<\/i>(3), e0247143.<\/span><\/p>\n<p><span style=\"font-size: 12pt\">del-Pino-Casado, R., Rodriguez Cardosa, M., L\u00f3pez-Mart\u00ednez, C. &amp; Orgeta, V. (2019). The association between subjective caregiver burden and depressive symptoms in carers of older relatives: A systematic review and meta-analysis. <i>PLOS ONE<\/i>,\u00a0<i>14<\/i>(5), e0217648.<\/span><\/p>\n<p><span style=\"font-size: 12pt\">Gr\u00e4\u00dfel, E. &amp; Adabbo, R. (2011). Perceived burden of informal caregivers of a chronically ill older family member. <em>The Journal of Gerontopsychology and Geriatric Psychiatry, 24,<\/em> 143-154. doi:10.1024\/1662-9647\/a000042<\/span><\/p>\n<p><span style=\"font-size: 12pt\">Lazarus, R.S. &amp; Folkman, S. (1984). <em>Stress, appraisal, and coping<\/em>. New York, NY: Springer.<\/span><\/p>\n<p><span style=\"font-size: 12pt\">Pearlin, L.I., Mullan, J.T., Semple, S.J. &amp; Skaff, M.M. (1990). Caregiving and the stress process: An overview of concepts and their measures. <em>The Gerontologist, 30<\/em>, 583-594. doi:10.1093\/geront\/30.5.583<\/span><\/p>\n<p><span style=\"font-size: 12pt\">Storey, J. E. (2020). Risk factors for elder abuse and neglect: A review of the literature.<em> Aggression and Violent Behavior, 50<\/em>, 101339.<\/span><\/p>\n<p><span style=\"font-size: 12pt\">Van der Lee, J., Bakker, T. J., Duivenvoorden, H. J. &amp; Dr\u00f6es, R. M. (2014). Multivariate models of subjective caregiver burden in dementia: a systematic review. <i>Ageing Research Reviews<\/i>,\u00a0<i>15<\/i>, 76-93.<\/span>\n<\/div>\n<\/div>\n<\/div>\n<div class=\"rrze-elements accordion style_default\" id=\"accordion-3\"><\/div>\n<div class=\"accordion-group med\">\n<h2 class=\"accordion-heading\"><button class=\"accordion-toggle\" data-toggle=\"collapse\"  href=\"#collapse_3\" aria-expanded=\"false\" aria-controls=\"collapse_3\" id=\"collapse_button_3\"> Download <\/button><\/h2>\n<div id=\"collapse_3\" class=\"accordion-body\" aria-labelledby=\"collapse_button_3\">\n<div class=\"accordion-inner clearfix\">\n<p><span style=\"font-size: 12pt\">You can register to download the scales <a href=\"https:\/\/www.caregiving-tests.de\/?page_id=56&amp;preview=true\">here<\/a>.<\/span><\/p>\n<p><span style=\"font-size: 12pt\"><span style=\"color: #ff0000\"><strong>! <\/strong><\/span>Those responsible for this website guarantee that all information provided during registration will be treated confidentially, in particular that it will not be passed on to third parties.\u00a0<\/span><\/p>\n<p><span style=\"font-size: 12pt\">Downloading is permitted for non-commercial use only, which means specifically that<\/span><\/p>\n<ul>\n<li><span style=\"font-size: 12pt\">the respondent completing the self-assessment tool incurs no immediate (direct) costs (billing as a health insurance benefit by third parties, e.g., doctors, is possible) and<\/span><\/li>\n<li><span style=\"font-size: 12pt\">the Relationship Quality is not resold to third parties in any form as part of a combined survey tool consisting of several survey instruments (e.g., as part of a larger, fee-based assessment tool).<\/span><\/li>\n<\/ul>\n<\/div>\n<\/div>\n<\/div>\n<p>\n<\/div>\n\n<p><span style=\"font-size: 10pt\">Burden Scale for Family Caregivers (BSFC); Burden Scale for Family Caregivers \u2013 short form (BSFC-s); Informal Caregiver (CGs)<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Gr\u00e4\u00dfel and Adabbo (2011) defined informal caregiver burden as the subjective perception of stress that results from a domestic care situation. The extent to which a caregiver (CG) feels stressed&hellip;<!--&hellip;--> <a class=\"more-link fa fa-angle-double-right\" href=\"https:\/\/www.caregiving-tests.de\/en\/subjektive-pflegebelastung\/\" title=\"Read more about &quot;Subjective Burden&quot;\"><\/a><\/p>\n","protected":false},"author":5160,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_rrze_cache":"enabled","_rrze_multilang_single_locale":"en_GB","_rrze_multilang_single_source":"https:\/\/www.caregiver-scales.med.fau.de\/?page_id=15","footnotes":""},"page_category":[8,7],"page_tag":[],"class_list":["post-1100","page","type-page","status-publish","hentry","page_category-bsfc","page_category-bsfc-s","en-GB"],"_links":{"self":[{"href":"https:\/\/www.caregiving-tests.de\/wp-json\/wp\/v2\/pages\/1100","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.caregiving-tests.de\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.caregiving-tests.de\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.caregiving-tests.de\/wp-json\/wp\/v2\/users\/5160"}],"replies":[{"embeddable":true,"href":"https:\/\/www.caregiving-tests.de\/wp-json\/wp\/v2\/comments?post=1100"}],"version-history":[{"count":10,"href":"https:\/\/www.caregiving-tests.de\/wp-json\/wp\/v2\/pages\/1100\/revisions"}],"predecessor-version":[{"id":2573,"href":"https:\/\/www.caregiving-tests.de\/wp-json\/wp\/v2\/pages\/1100\/revisions\/2573"}],"wp:attachment":[{"href":"https:\/\/www.caregiving-tests.de\/wp-json\/wp\/v2\/media?parent=1100"}],"wp:term":[{"taxonomy":"page_category","embeddable":true,"href":"https:\/\/www.caregiving-tests.de\/wp-json\/wp\/v2\/page_category?post=1100"},{"taxonomy":"page_tag","embeddable":true,"href":"https:\/\/www.caregiving-tests.de\/wp-json\/wp\/v2\/page_tag?post=1100"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}